National Myeloma Registry
The National Myeloma Registry, as part of the IMAGe group, forms the backbone of research in collecting and collating the data prospectively on patients of Multiple Myeloma and other plasma cell dyscrasias across the subcontinent. The platform provides an opportunity for the doctors to follow up with the patients, acts as an EMR, and research database with real-time information regarding the patients. At the same time, the patient mobile application component of the Hybrid application helps improve their compliance through reminders, graphs of their investigations, answers to their routine questions, reminders regarding the investigations, hospital appointments, and drug dosing, and lastly, acts as a patient diary. The various centers registered with the number of patients enrolled by each center respectively are depicted below. The salient features of statistical analysis as on 1st Jan 2023 are depicted in the pictorial form below as a ready reckoner. For those institutes who want to join hands with IMAGe can write to us at : secretary@imagesociety.co.in
We sincerely hope that more centres get added and share their data so that a comprehensive National Myeloma Registry can be maintained to add value to the research. Those who haven’t joined yet are requested to come forward and join at https://care4myeloma.in/welcome
National Myeloma Registry consists of the database which has the records of all the Myeloma patients who are presently undergoing treatment in the following healthcare facilities:
It includes the following:
- Demographic details of the patients
- The type of disease they have
- The details of treatment they are undergoing on • Their response to the treatment
- The Overall Survival of the patients
Expression of Interest
The data available in the database keeps on getting updated periodically.
The top 10 Center as on :
OUR PARTNER INSTITUTIONS
